社会支持对炎症性肠病患者疾病复发感知的影响：疾病知识的遮掩效应

The Impact of Social Support on the Disease Recurrence Perception in Patients with Inflammatory Bowel Disease: The Masking Effect of Disease Knowledge

摘要: 目的：探讨炎症性肠病患者的疾病知识在社会支持和疾病复发感知之间的中介效应。方法：使用便利抽样法于2023年9月至2023年12月选取青岛市某三级甲等医院收治的334名炎症性肠病患者作为研究对象。采用IBD患者疾病复发感知量表、领悟社会支持量表、中文版克罗恩病与溃疡性结肠炎知识问卷对其进行调查。结果：社会支持总分与疾病复发感知总分呈负相关(r = −0.143, P < 0.05)、与疾病知识总分呈正相关(r = 0.137, P < 0.05)，疾病知识总分与疾病复发感知总分呈正相关(r = 0.126, P < 0.05)。疾病知识在社会支持和疾病复发感知之间发挥遮掩效应，效应量为0.0224，遮掩效应占直接效应量的12.38%。结论：社会支持是炎症性肠病患者疾病复发感知的一个负向预测因子，可直接影响患者的疾病复发感知，也可以通过疾病知识发挥间接效应。临床工作者可增加对炎症性肠病患者疾病知识和社会支持的关注，以促进患者准确感知疾病复发风险，积极应对，防范炎症性肠病复发。

Abstract: Objective: To investigate the mediating effect of disease knowledge between social support and disease recurrence perception in patients with inflammatory bowel disease. Methods: A total of 334 patients with inflammatory bowel disease who were hospitalized in the Department of gastroenterology of a tertiary hospital in Qingdao from September 2023 to December 2023 were selected by convenience sampling method. The patients were investigated by using the Disease Recurrence Perception Scale, Perceptive Social Support Scale and the Crohn’s and Colitis Knowledge Score. Results: The total score of social support was negatively correlated with the disease recurrence perception (r = −0.143, P < 0.05), and positively correlated with the disease knowledge (r = 0.137, P < 0.05), and the total score of disease knowledge was positively correlated with disease recurrence perception (r = 0.126, P < 0.05). The masking effect of disease knowledge between social support and perception of disease recurrence was 0.0224, and the masking effect accounted for 12.38% of the direct effect size. Conclusion: Social support is a negative predictor of disease recurrence perception in patients with inflammatory bowel disease, which not only directly influences the patients’ perception of disease recurrence, but also can exerts indirect effects through disease knowledge. Healthcare professionals can pay more attention to the disease knowledge and social support of patients with inflammatory bowel disease, in order to promote patients to accurately perceive the risk of disease recurrence, and thus actively respond to and prevent the recurrence of inflammatory bowel disease.