疾病获益感在老年慢性病病人家庭照顾者中的研究进展
Research Progress on the Benefit Finding among Caregivers of Elderly Patients with Chronic Diseases
DOI: 10.12677/ns.2025.1411298, PDF,   
作者: 王 凡:深圳大学医学部护理学院,广东 深圳;遵义医科大学珠海校区护理学院,广东 遵义;孙丽媛*:深圳大学医学部护理学院,广东 深圳
关键词: 老年慢性病照顾者疾病获益感综述Chronic Diseases in the Elderly Caregivers Benefit Finding Review
摘要: 我国已步入老龄化社会,老年慢性病“多病共存”的现状已成为我国严重的公共卫生问题,由此所带来的医疗和照顾负担日益加剧,对照顾者群体的获益感体验及心理健康水平造成严重影响。因此,本文就疾病获益感的相关概念、照顾者获益感评估工具、国内外研究现状、影响因素、干预措施等方面进行综述,旨在为挖掘和提升老年慢性病病人照顾者群体的疾病获益感提供一定的理论基础,为完善老年慢性病家庭协同护理策略提供一定的参考依据。
Abstract: China has entered an aging society, and the “coexistence of multiple” chronic diseases among the elderly has become a significant public health issue. The resulting burden of medical care and caregiving is increasingly severe, profoundly affecting the benefit finding and mental health of caregivers. Therefore, this article reviews relevant concepts of benefit finding, assessment tools for evaluating the benefit finding among caregivers, the current state of research both domestically and internationally, influencing factors, and intervention measures. The aim is to provide a theoretical foundation for exploring and enhancing the benefit finding among caregivers of elderly patients with chronic diseases, and to offer a reference for improving family collaborative care strategies for elderly patients with chronic conditions.
文章引用:王凡, 孙丽媛. 疾病获益感在老年慢性病病人家庭照顾者中的研究进展[J]. 护理学, 2025, 14(11): 2242-2249. https://doi.org/10.12677/ns.2025.1411298

参考文献

[1] 郭艳童, 于媛媛, 陈莹莹, 等. 山东省主动健康示范区域老年人慢病管理知信行现状及影响机制[J]. 山东大学学报(医学版), 2024, 62(7): 98-105.
[2] 李雨晴, 张艳, 景丽伟, 等. 老年慢性病共病病人治疗负担现状和影响因素分析[J]. 循证护理, 2024, 10(4): 700-704.
[3] 陈梦奇, 迟晨汝, 杨丹, 等. 老年慢性病患者健康素养现状及其影响因素[J]. 济宁医学院学报, 2024, 47(1): 36-40.
[4] 董昱, 王桦, 檀春玲, 等. 我国老年人四大慢性病流行现状及对伤残调整生命年的影响[J]. 医学与社会, 2019, 32(10): 59-61, 65.
[5] 牟华, 付艳枝, 梁前晖, 等. 癌症患者照顾者疾病获益感体验的Meta整合[J]. 护士进修杂志, 2022, 37(13): 1208-1213.
[6] Affleck, G. and Tennen, H. (1996) Construing Benefits from Adversity: Adaptotional Significance and Disposltional Underpinnings. Journal of Personality, 64, 899-922. [Google Scholar] [CrossRef] [PubMed]
[7] 边静, 张兰凤, 刘谆谆, 等. 疾病获益感量表修订版在癌症家庭照顾者中应用的信效度检验[J]. 中国全科医学, 2018, 21(17): 2091-2096.
[8] Lum, H.D., Lo, D., Hooker, S. and Bekelman, D.B. (2014) Caregiving in Heart Failure: Relationship Quality Is Associated with Caregiver Benefit Finding and Caregiver Burden. Heart & Lung, 43, 306-310. [Google Scholar] [CrossRef] [PubMed]
[9] 梅展展, 符博, 张振香. 社区老年脑卒中患者配偶照顾获益感的质性研究[J]. 中华现代护理杂志, 2021, 27(25): 3397-3403.
[10] 胡苗叶, 郑小芬, 吴亚美, 等. 血液肿瘤患者照顾者疾病获益感及其影响因素分析[J]. 温州医科大学学报, 2022, 52(11): 889-893.
[11] Weaver, K.E., Llabre, M.M., Lechner, S.C., Penedo, F. and Antoni, M.H. (2008) Comparing Unidimensional and Multidimensional Models of Benefit Finding in Breast and Prostate Cancer. Quality of Life Research, 17, 771-781. [Google Scholar] [CrossRef] [PubMed]
[12] 张睿, 李峥. 中文版照顾者积极感受量表的信效度研究[J]. 中华护理杂志, 2007(12): 1068-1071.
[13] 梅永霞. 脑卒中照顾者获益感概念框架及其评估工具的研究[D]: [博士学位论文]. 郑州: 郑州大学, 2018.
[14] Li, Q., Lin, Y., Xu, Y., Zhou, H., Yang, L. and Xu, Y. (2017) Construct Validity of the 17-Item Benefit Finding Scale in Chinese Cancer Patients and Their Family Caregivers: A Cross-Sectional Study. Supportive Care in Cancer, 25, 2387-2397. [Google Scholar] [CrossRef] [PubMed]
[15] Cohen, C.A., Colantonio, A. and Vernich, L. (2002) Positive Aspects of Caregiving: Rounding Out the Caregiver Experience. International Journal of Geriatric Psychiatry, 17, 184-188. [Google Scholar] [CrossRef] [PubMed]
[16] 周振峰, 姜文彬, 刘美艳, 等. 创伤后成长在首发脑卒中患者照顾者家庭抗逆力及照顾负担中的中介效应[J]. 护士进修杂志, 2024, 39(8): 799-804.
[17] 王晓令. 老年脑卒中患者疾病获益感现状及影响因素研究[D]: [硕士学位论文]. 新乡: 新乡医学院, 2022.
[18] Yan, H., Yang, J., Luo, C., Zhang, L., Tian, Y., Cui, S., et al. (2023) Development and Psychometric Assessment of the Benefit Finding Scale for Chinese Older Adults with Chronic Diseases. Research in Gerontological Nursing, 16, 44-52. [Google Scholar] [CrossRef] [PubMed]
[19] Song, Y., Wang, M., Zhu, M., Wang, N., He, T., Wu, X., et al. (2024) Benefit Finding among Family Caregivers of Patients with Advanced Cancer in a Palliative Treatment: A Qualitative Study. BMC Nursing, 23, Article No. 397. [Google Scholar] [CrossRef] [PubMed]
[20] Cheng, S., Chan, W.C., Fung, H.H. and Lam, L.C.W. (2022) Self-Efficacy in Controlling Upsetting Thoughts, but Not Positive Gains, Mediates the Effects of Benefit-Finding Group Intervention for Alzheimer Family Caregivers. Psychology and Aging, 37, 766-775. [Google Scholar] [CrossRef] [PubMed]
[21] 罗曹靖. 赋权在脑卒中患者照护者延续护理的应用价值分析[J]. 现代诊断与治疗, 2021, 32(3): 481-482.
[22] 付永梅, 方晓霞, 乔艳丽, 等. 家庭赋权行为干预对中老年肺癌放疗患者及其照顾者出院准备和生活质量的影响[J]. 临床心身疾病杂志, 2024, 30(3): 85-89.
[23] Lin, X., Chen, Z., Zhao, Q. and Zhou, X. (2024) Benefit-Finding Profiles and Comparison of Caregiving Ability among Informal Caregivers of Patients with Lung Cancer: A Latent Profile Analysis. Asia-Pacific Journal of Oncology Nursing, 11, Article ID: 100480. [Google Scholar] [CrossRef] [PubMed]
[24] 朱晓佳. 老年期痴呆患者的照顾者获益感现状调查及影响因素研究[D]: [硕士学位论文]. 十堰: 湖北医药学院, 2023.
[25] 王田田, 吕世慧, 周超, 等. 卵巢癌患者家庭照顾者疾病获益感现状及影响因素研究[J]. 护理管理杂志, 2023, 23(6): 464-468+475.
[26] 张玉晶, 张婷, 赵培文, 等. 半失能老年人心理健康、照护依赖情况调查及与主要照顾者健康权利赋能的关系[J]. 中国健康心理学杂志, 2023, 31(10): 1484-1488.
[27] 杨翠翠, 赵红, 崔新华. 老年1型脆性糖尿病病人家庭主要照顾者负担水平与其应对方式的相关性研究[J]. 全科护理, 2022, 20(12): 1709-1712.
[28] 蔺波, 马衣努尔·托合提, 曹晓林. 老年肿瘤患者主要照顾者疾病获益感及影响因素分析[J]. 新疆医学, 2021, 51(8): 959-963, 943.
[29] Tedeschi, R.G. (2023) The Post‐Traumatic Growth Approach to Psychological Trauma. World Psychiatry, 22, 328-329. [Google Scholar] [CrossRef] [PubMed]
[30] 李玉红, 孔祥颖, 李洋. 老年2型糖尿病病人照顾者疾病获益感的质性研究[J]. 全科护理, 2022, 20(21): 3006-3009.
[31] 马丽, 史崇清, 陈向荣. 肺癌患者家庭照顾者获益感的潜在剖面分析及护理对策[J]. 中华护理杂志, 2023, 58(11): 1330-1338.
[32] 赵玲, 刘杉杉, 李红云, 等. 老年食管癌病人术后照顾者疾病获益感与应对方式的相关性研究[J]. 全科护理, 2022, 20(5): 678-682.
[33] 闫冰, 张欢欢, 刘洁, 等. 正念干预对脑卒中患者照顾者照顾负担和生活质量的影响[J]. 河南大学学报(医学版), 2022, 41(3): 212-216, 220.
[34] Nasreen, H.E., Tyrrell, M., Vikström, S., Craftman, Å., Syed Ahmad, S.A.B., Zin, N.M., et al. (2024) Caregiver Burden, Mental Health, Quality of Life and Self-Efficacy of Family Caregivers of Persons with Dementia in Malaysia: Baseline Results of a Psychoeducational Intervention Study. BMC Geriatrics, 24, Article No. 656. [Google Scholar] [CrossRef] [PubMed]
[35] Clark, I.N., Ip-Winfield, V., Murphy, M., Shanahan, E. and Grocke, D. (2022) The Bonny Method of Guided Imagery and Music for Family Caregivers of People with Dementia: A within Subject Feasibility Study. Nordic Journal of Music Therapy, 32, 220-240. [Google Scholar] [CrossRef
[36] 张茜雯. 阅读疗法对晚期肺癌患者的照顾者获益感的干预研究[D]: [硕士学位论文]. 郑州: 郑州大学, 2022.
[37] 蒋娟, 张美琳, 孔令霜, 等. 怀旧疗法对老年癌症患者家庭照顾者照顾负担及积极体验的影响[J]. 检验医学与临床, 2020, 17(14): 2049-2052.
[38] 洪宇, 静都, 钱旭, 等. 家庭授权模式在首发脑卒中吞咽障碍患者主要照顾者中的应用[J]. 中国实用护理杂志, 2024, 36(36): 263-271.
[39] 张慧霞, 李凤玲, 王富艳. 聚焦解决模式在老年髋部骨折患者主要照顾者中的应用价值研究[J]. 中国实用护理杂志, 2017, 33(20): 1547-1551.
[40] 张源慧, 唐龙, 王凤艳, 等. FOUCS模式联合ATDE对老年COPD病人照顾者决策疲劳的影响[J]. 护理研究, 2022, 36(6): 1114-1116.
[41] 陈丹, 宁晓东, 潘慧, 等. 家庭尊严干预在老年轻度认知障碍患者主要照顾者中的应用[J]. 中华护理杂志, 2019, 54(4): 543-548.
[42] Seiler, A., Amann, M., Hertler, C., Christ, S.M., Schettle, M., Kaeppeli, B.M., et al. (2024) Effects of Dignity Therapy on Psychological Distress and Wellbeing of Palliative Care Patients and Family Caregivers—A Randomized Controlled Study. BMC Palliative Care, 23, Article No. 73. [Google Scholar] [CrossRef] [PubMed]
[43] 庄碧嗓. 基于PAC模型构建痴呆家庭照顾者网络干预模式及应用研究[D]: [硕士学位论文]. 遵义: 遵义医科大学, 2022.
[44] 赵雅娜. 基于互联网+ IMB模型的护理干预在脑卒中患者主要照顾者中的应用研究[D]: [硕士学位论文]. 太原: 山西医科大学, 2021.
[45] 薛玲玲. 基于PERMA模式的肝癌患者家庭抗逆力的积极心理干预方案构建及应用[D]: [硕士学位论文]. 新乡: 新乡医学院, 2023.
[46] Cui, P., Cheng, C., An, H., Chen, X., Chen, C. and Hu, H. (2024) A Chain Mediation Model Reveals the Association between Family Sense of Coherence and Quality of Life in Caregivers of Advanced Cancer Patients. Scientific Reports, 14, Article No. 10701. [Google Scholar] [CrossRef] [PubMed]