结直肠癌造口患者自我管理微信小程序需求的质性研究
A Qualitative Study on the Functional Requirements of WeChat Mini-Programs for Self-Management in Colorectal Cancer Ostomy Patients
摘要: 目的：探究结直肠癌造口患者对自我管理微信小程序的需求及建议，为开发以结直肠癌造口患者为中心的居家自我管理微信小程序提供参考。方法：于2023年12月~2024年2月，采用目的抽样方法，对株洲市某三甲医院的18名结直肠癌造口患者进行半结构式访谈，收集患者对于自我管理微信小程序的需求及建议，采用Colaizzi 7步分析法，通过Nvivo 11.0 plus软件对资料进行整理分析。结果：共提取4个主题，包括对自我管理微信小程序的使用态度，肠造口自我管理微信小程序内容需求，肠造口自我管理微信小程序功能需求，肠造口自我管理微信小程序设计需求。结论：结直肠癌造口患者对自我管理微信小程序的使用在总体上持积极态度，同时要求小程序的功能操作简单、多样化，确保在实际使用中方便且有效。
Abstract: Objective: This study aims to explore the needs and suggestions of colorectal cancer ostomy patients regarding WeChat mini-programs for self-management, providing insights for the development of a home-based self-management WeChat mini-program centered around colorectal cancer ostomy patients. Methods: December 2023 - February 2024, a purposive sampling method was employed to conduct semi-structured interviews with 18 colorectal cancer ostomy patients at a tertiary hospital in Zhuzhou City. Patient requirements and suggestions for the WeChat mini-program for self-management were collected. Colaizzi's 7-step analysis method was used, and data were organized and analyzed using Nvivo 11.0 plus software. Results: Four main themes were extracted, including attitudes towards the use of the self-management WeChat mini-program, content requirements for the ostomy self-management WeChat mini-program, functional requirements for the ostomy self-management WeChat mini-program, and design preferences for the ostomy self-management WeChat mini-program. Conclusion: Colorectal cancer ostomy patients generally hold a positive attitude towards the use of the WeChat mini-program for self-management. Simultaneously, they emphasize the need for simplicity in operation and diversified functionalities to ensure convenience and effectiveness in real-world usage.
文章引用：吴衍娴, 张珍, 王小艳, 吴悦, 周金花, 谭江红. 结直肠癌造口患者自我管理微信小程序需求的质性研究[J]. 护理学, 2024, 13(8): 1167-1175. https://doi.org/10.12677/ns.2024.138165

参考文献

[1] Yang, Y., Gao, Z., Huang, A., Shi, J., Sun, Z., Hong, H., et al. (2023) Epidemiology and Early Screening Strategies for Colorectal Cancer in China. Chinese Journal of Cancer Research, 35, 606-617. [Google Scholar] [CrossRef] [PubMed]
[2] Zehra, S. and Abbas, M.K. (2022) Hartmann’s Reversal: A Single-Centre Experience. Cureus, 14, e31654. [Google Scholar] [CrossRef] [PubMed]
[3] Thom, B., Friedman, D.N., Aviki, E.M., Benedict, C., Watson, S.E., Zeitler, M.S., et al. (2022) The Long-Term Financial Experiences of Adolescent and Young Adult Cancer Survivors. Journal of Cancer Survivorship, 17, 1813-1823. [Google Scholar] [CrossRef] [PubMed]
[4] Özden, Z.M. and Kılıç, M. (2023) The Effect of Self-Efficacy Levels of Patients with Intestinal Stoma on Stoma Adaptation. Supportive Care in Cancer, 31, 252. [Google Scholar] [CrossRef] [PubMed]
[5] 赵煜华, 王俊霞, 吴田瑞, 等. 肠造口患者出院准备度干预方案的构建及应用[J]. 护理学杂志, 2023, 38(9): 6-9.
[6] Verkuijl, S.J., Jonker, J.E., Furnée, E.J.B., Kelder, W., Hoff, C., Hess, D.A., et al. (2023) The Effect of a Temporary Stoma on Long-Term Functional Outcomes Following Surgery for Rectal Cancer. Diseases of the Colon & Rectum, 67, 291-301. [Google Scholar] [CrossRef] [PubMed]
[7] Xu, L. and Zhou, M. (2023) Effect of Internet Multiple Linkage Mode-Based Extended Care Combined with In-Hospital Comfort Care on Colorectal Cancer Patients Undergoing Colostomy. World Journal of Gastrointestinal Surgery, 15, 1959-1968. [Google Scholar] [CrossRef] [PubMed]
[8] 王泠, 李辉, 张凤娇. 肠造口患者出院后继续健康教育的实施和效果验证[J]. 中国护理管理, 2023, 23(4): 481-486.
[9] Xavier, S., Medeiros, L.P., Lima, N.A., et al. (2024) Sociodemographic and Clinical Characteristics of People with Ostomy and the Adaptive Domains of Roy’s Theory: A Cross-Sectional Study. PLoS One, 19, e302036.
[10] 吴美丹, 王珑, 梁小琴, 等. 微信教学小程序在肠造口病人健康宣教中的应用[J]. 全科护理, 2023, 21(17): 2366-2368.
[11] 国家卫生健康委员会医政司, 中华医学会肿瘤学分会. 国家卫生健康委员会中国结直肠癌诊疗规范(2023版) [J]. 中华普通外科杂志, 2023, 38(8): 561-581.
[12] 刘金枚. 医养结合机构吞咽障碍管理移动医疗平台模块内容的构建研究[D]: [硕士学位论文]. 成都: 成都医学院, 2023.
[13] 刘彤. 慢性伤口患者居家护理管理小程序的开发及临床初步检测[D]: [硕士学位论文]. 太原: 山西医科大学, 2023.
[14] Muhammad, F.A., Akpor, O.A. and Akpor, O.B. (2022) Lived Experiences of Patients with Ostomies in a University Teaching Hospital in Kwara State, Nigeria. Heliyon, 8, e11936. [Google Scholar] [CrossRef] [PubMed]
[15] 王冲, 石东方, 谢恬枫, 等. 肠造口患者对“互联网 + 护理上门服务”真实体验的质性研究[J]. 护理学杂志, 2023, 38(20): 8-11.
[16] 黄阿美, 孟英涛, 王兴莉, 等. 基于“互联网+”信息化医护平台造口患者延续性护理服务模式的构建及应用[J]. 护理管理杂志, 2023, 23(5): 350-354.
[17] 汪丽萍, 颜巧元, 张宁, 等. 肠造口患者的远程延续护理[J]. 护理学杂志, 2021, 36(13): 108-110.
[18] 庄聪琼, 王文, 张琏瑜, 等. 微信多元化健康教育在肠造口患者自我管理中的应用研究[J]. 中国卫生标准管理, 2021, 12(13): 160-164.
[19] 朱雪琼, 柴艳茹. 移动互联网平台在慢性病病人康复管理中的研究进展[J]. 护理研究, 2023, 37(21): 3863-3868.
[20] 胡娇娇, 王建宁, 詹梦梅, 等. 肠造口患者居家护理需求质性研究的Meta整合[J]. 中华护理杂志, 2023, 58(3): 357-365.
[21] Odensten, C., Gunnarsson, U., Johansson, J. and Näsvall, P. (2023) Impact of Parastomal Hernia on Colostomy Costs at 1 Year: Secondary Analysis of a Randomized Clinical Trial (STOMAMESH). Scandinavian Journal of Surgery, 113, 33-39. [Google Scholar] [CrossRef] [PubMed]
[22] Burghgraef, T.A., Geitenbeek, R.T.J., Broekman, M., Hol, J.C., Hompes, R. and Consten, E.C.J. (2023) Permanent Stoma Rate and Long-Term Stoma Complications in Laparoscopic, Robot-Assisted, and Transanal Total Mesorectal Excisions: A Retrospective Cohort Study. Surgical Endoscopy, 38, 105-115. [Google Scholar] [CrossRef] [PubMed]
[23] 唐玲, 郭爱敏, 俞杰, 等. 社区老年慢性阻塞性肺疾病患者对基于移动医疗的健康教育需求的质性研究[J]. 中国护理管理, 2022, 22(4): 537-542.
[24] 郑钦, 曹艳佩. 慢性肾脏病患者饮食管理微信小程序功能需求的质性研究[J]. 上海护理, 2023, 23(3): 6-12.

为你推荐